Скачать или смотреть The ELF Patient Organisation Networking Day 2025

The ELF Patient Organisation Networking Day is an opportunity for members of the ELF Patient Organisation Network to connect, share knowledge and explore current challenges in respiratory health.

The 2025 event took place on Saturday 27 September with the theme “Improving respiratory health – thinking globally, acting locally”.

Public engagement with science is changing, offering both new challenges and opportunities. While misinformation can spread quickly online, these platforms also provide powerful spaces to share accurate, evidence-based knowledge with a global audience. In 2025, the respiratory community is facing significant challenges, including shifting political priorities, health inequities and reduced investment in research.

Yet, these challenges also create opportunities for innovation, adaptation and continued leadership, as we work together to improve respiratory health for all.

This event offered a space to reflect on these developments and to learn from organisations that are responding in innovative ways, including local initiatives, national campaigns, and international efforts. Participants had the chance to explore how organisations can support their patient communities and strengthen respiratory health in a fast-changing world.

00:00 Introduction
13:14 ERS President address with Prof. Silke Ryan & Prof. Joanna Chorostowska-Wynimko
22:25 Keynote: Our Kids' Climate with Maya Mailer
37:59 Keynote: Science Under Threat with Prof. Barbara Hoffman
56:02 Panel discussion with Chairs and speakers
1:06:30 Patient testimonial video (Global Voices for Lung Health)
1:17:05 Clean Air Healthy Lives Movement with Shane Fitch, Lovexair Spain
1:30:05 Crop Phenomenon: advocacy for vaccination and respiratory health with Dr. Ghulam Mustafa
1:40:41 What are patient organisations doing around the world? – Video reel
1:55:51 Panel discussion with Chairs and speakers
2:10:51 Introduction to afternoon session with Luca Roberti & Marion Wilkens
2:12:15 WHO Lung Health Resolution with José Luis Castro, WHO
2:19:17 Breakout group discussions (Part 1)
2:41:55 Breakout group discussions (Part 2)
2:58:35 Congress theme for 2026 with Prof. Hilary Pinnock
3:05:28 10 Years of ELF Patient Organisation Networking Day
3:16:52 Closing words from Dimitris Kontopidis, ELF Chair