Supporting Mental Health animation

The impact of rare diseases on mental health is well-known for people living with and caring for someone with a rare disease.

It can be difficult to separate physical from mental health, and a rare disease diagnosis can have a huge impact on the mental health of people living with a rare disease.

There is also a large impact on the mental health of people caring for rare disease patients. Patients and their families may not have time to worry about mental well-being, as they can be too busy worrying about healthcare and treatment. This means they might forget to look after their mental health, which can be bad for their long-term well-being.

Patient organisations see the effects of poor mental health in rare disease patients and their families. They are often responsible for the care and protection of mental health in the rare community. It is therefore important that patient organisations feel ready to support their community.

Watch a quick animation summary before heading to The Resources Hub to complete our 'Supporting Mental Health course'