Скачать или смотреть Oregon mom shares hope for kids diagnosed with rare genetic disorders

From the big floppy bow adorning her sweet face, down to her dainty little hands, it's easy to see why Deirdra Hoffman adores her daughter, Journey Love.

“She's just the light of our family,” said Hoffman from her Dallas, Ore. home. "She really is."

But there's also what you can't see. When Journey Love was born, doctors didn't expect her to live longer than a week. In December, she'll turn 3 years old.

“She is doing some amazing things that we were told she would never do,” said Hoffman.

Hoffman said Journey Love was diagnosed with Trisomy 13, also known as Patau syndrome. It's a rare genetic disorder that can lead to physical and intellectual challenges. Medical literature has described the condition as "incompatible with life."

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