Ask-the-Expert: Myotonic Dystrophy and the Heart

Do you have questions for myotonic dystrophy (DM) doctors? Join world-class DM cardiologist, Dr. William J. Groh, for an "Ask the Expert" webinar on DM and the heart!

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Myotonic Dystrophy Cardiac Resources

Myotonic Dystrophy and the Heart: https://www.myotonic.org/sites/defaul...

A Community Guide. For individuals living with myotonic dystrophy, heart or “cardiac” issues can pose a serious threat to their health. Since the heart is itself a muscle, people living with myotonic dystrophy type 1 (DM1) or type 2 (DM2) can experience cardiac issues. This resource aims to help people living with DM understand heart health risks and how they are managed.

Consensus-based Care Recommendations for Cardiologists Treating Adults with Myotonic Dystrophy Type 1: https://www.myotonic.org/sites/defaul...

In order to improve and standardize care for people living with myotonic dystrophy, 10 leading myotonic dystrophy (DM1) cardiologists in Western Europe, the UK, Canada, Japan and the US joined together to create these Consensus-based Care Recommendations!

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About Our Ask-the-Expert Webinar Series

After the success of the Stump-the-Doctor session at the 2020 Virtual MDF Conference, MDF created a series using the same format to connect families and DM experts.

Find all our upcoming Ask the Expert dates and previously recorded sessions at https://www.myotonic.org/ask-expert-s...

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MDF Resources referenced in this video:

Toolkits & Publications - https://www.myotonic.org/toolkits-pub...

Support Groups - https://www.myotonic.org/find-support

Digital Academy - https://www.myotonic.org/digital-academy

Calendar of Events - https://www.myotonic.org/calendar/month

DM Drug Development Pipeline - https://www.myotonic.org/pipeline

Myotonic Dystrophy Family Registry - https://myotonicregistry.patientcross...

2025 MDF Annual Conference - https://www.myotonic.org/2025-mdf-ann...

Sign up for My Dispatch, our monthly e-newsletter - https://www.myotonic.org/sign-emails-0

Learn more about myotonic dystrophy at https://www.myotonic.org/

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0:00:00 Welcome & Introduction
0:05:10 Myotonic Dystrophy & the Heart
0:49:36 Questions & Answers
1:12:30 Closing Remarks