Скачать или смотреть ONE IN A MILLION (AHC SONG) | ELWIN

https://open.spotify.com/track/5RqD9Z...

Elwin's daughter Indy has AHC (Alternating Hemiplegia of Childhood), a complex, ultra-rare neurological disease. AHC is about a 1 in a million condition.The song describes his feelings about her, the rollercoaster they go through every day and his fear of losing her. This is his ode to Indy and a call for help.

Parents of "AHC Champions" all over the world are united and fighting to raise money to find a cure.

Help them and donate:
www.ahckids.nl (NL)
www.ahcfe.eu (Europe)
www.cureahc.org (USA)
www.ahckids.org (USA)
www.ahcuk.org (UK)

Alternating Hemiplegia of Childhood (AHC) is a rare neurological disorder in which children regularly have temporary paralysis attacks of one or both sides of the body and can last from a few minutes to several days. An attack is often accompanied by loss of speech, reduced consciousness, muscle cramps, inability to eat and drink, breathing disorders and a lot of pain. In addition, children with AHC develop more slowly than in peers without AHC. Many children with AHC also have epilepsy.

"Living with AHC is like living with timebombs, you never know which one will blow up today."

Watch the documentary: www.humantimebombs.com

@10YearsATP1A3 #10YearsATP1A3
#1inamillion #ahcawareness

©2022 Elwin Lentze