Скачать или смотреть Unraveling Castleman Disease

Dr David Fajgenbaum’s diagnosis & journey with Castleman disease - 2:14
Challenges faced while Dr Fajgenbaum tried to treat himself - 13:00
Role of support system of peers and faculty in Dr Fajgenbaum’s journey - 15:28
Dr Fajgenbaum’s Motivation behind MBA after Medical school - 18:13
Orphan Disease Center at Penn & Dr Fajgenbaum’s patient impact - 20:28
Castleman disease etiology, symptoms, presentation & types - 22:24
Is Castleman disease genetic? - 26:47
Diagnostic journey of Castleman disease - 29:11
Mileva’s tips for parents with kids who have Castleman disease - 31:33
Castleman disease treatment regimen - 34:52
How can patients join the fight with Dr Fajgenbaum? - 41:09
What is the likelihood of recurrence and survival rate across all the subtypes of CD? - 44:42
Life cycle of a research blood sample from Castleman Disease patient - 51:51
What can patients do to keep their immune system strengthened? - 56:07
Long term effects of multiple relapses & preventative measures - 57:36
Holistic therapies & lifestyle choices that can assist in preventing flare ups? - 59:16
Future of Castleman disease research, treatments, clinical trials - 1:00:55

Dr. David Fajgenbaum was diagnosed with a rare disorder that killed 35% of patients within five years of diagnosis. Dr. Fajgenbaum realised that he would have to lead the charge against his rare condition and we are talking to this young doctor about his incredible journey unraveling Castleman Disease. Castleman Disease is a rare disease of lymph nodes and related tissues. This is diagnosed in about 5000 people of all ages each year in the United States. This disorder activates the body's immune system, releasing excess inflammatory proteins that can shut down the liver, kidneys and bone marrow. Dr. David Fajgenbaum, Founding Director of the Castleman Disease Center at the University of Pennsylvania discusses the current understanding of the disease that he himself has had nearly for nine years, symptoms, treatment options and explore new trials and research that are in the offing.

This talk has been created by CureTalks.com, in association with University of Pennsylvania to facilitate discussions for solutions, with a mission to heal the world through information and sharing of knowledge. At CureTalks we discuss groundbreaking medical research including a wide range of medical, health, and wellness issues, bringing together the doctors, researchers and patients on the same platform.

Find Dr Fjgenbaum's book to read here:
https://www.amazon.com/Chasing-My-Cur...

#DavidFajgenbaum #castlemandisease #rarediseases #orphandiseases #immunedisorders #cdcn #pennorphancenter

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