Скачать или смотреть Rare Disease Advocacy and Research at the University of Notre Dame

Meet Barb Calhoun, the Reisenauer Family Director for the Patient Advocacy Initiative, and Sean Kassen, director of the Ara Parsgehian Medical Research Fund, both of whom to advocate for patients with rare diseases, as well as advancing research to accelerate the discovery and development of drugs and therapies for rare and neglected diseases.

Barb and Sean joined the Notre Dame Day live broadcast to share about Rare Disease research and advocacy at Notre Dame.

Learn more about the APMRF: https://www.parseghian.org/

Learn more about the minor in Science and Patient Advocacy: https://patientadvocacy.nd.edu/

Learn more about the Boler-Parseghian Center for Rare and Neglected Diseases: https://crnd.nd.edu/