Hermansky Pudlak Syndrome & The Human Race 2007

Описание к видео Hermansky Pudlak Syndrome & The Human Race 2007

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Each year, mine and my daughter's friends get together in hopes of raising funds to help fight the rare and incurable disease called Hermansky Pudlak Syndrome. Most people with this syndrome usually die in their 30's or 40's. If you'd like to know more visit www.hpsnetwork.org

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