Trust Their Gut: Family Level of Concern and Clinical Changes in Children with Medical Complexity

In this Complex Care Journal Club podcast episode, Dr. Nancy Murphy discusses the piloting of a home monitoring application for families of children with medical complexity and the associations between the level of parental concern and clinical status changes identified in secondary data analysis. She describes the key role that families played in guiding the study, the implications for clinical practice, and next steps from this work.

SPEAKERS:
Nancy Murphy, MD
Professor of Pediatrics and Chief, Division of Pediatric Complex Care
Department of Pediatrics, University of Utah School of Medicine

HOST:
Emily Goodwin, MD
Clinical Associate Professor of Pediatrics, University of Missouri Kansas City School of Medicine
Pediatrician, General Academic Pediatrics Beacon Program, Children’s Mercy Kansas City

DATES:
Initial publication: June 28, 2023

JOURNAL CLUB ARTICLE:
• Nkoy F, Stone B, Sheng X, Murphy N. High Parental Concern in Children With Medical Complexity: An Early Indicator of Illness. Hosp Pediatr. 2023;13(3):250-257. doi:10.1542/hpeds.2022-006876

OTHER REFERENCES:
• Nkoy F, Stone B, Sheng X, Murphy N. High Parental Concern in Children With Medical Complexity: An Early Indicator of Illness. Hosp Pediatr. 2023;13(3):250-257. doi:10.1542/hpeds.2022-006876
• Nkoy FL, Hofmann MG, Stone BL, et al. Information needs for designing a home monitoring system for children with medical complexity. Int J Med Inform. 2019;122:7-12. doi:10.1016/j.ijmedinf.2018.11.011
• Nkoy F, Stone B, Hofmann M, et al. Home-Monitoring Application for Children With Medical Complexity: A Feasibility Trial. Hosp Pediatr. 2021;11(5):492-502. doi:10.1542/hpeds.2020-002097

TRANSCRIPT:
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CITATION:
Murphy N, Goodwin E. Trust Their Gut: Family Level of Concern and Clinical Changes in Children with Medical Complexity. 06/2023. OPENPediatrics. Online Podcast.    • Trust Their Gut: Family Level of Conc...  .