Rare Disease Chat: Understanding primary hyperoxaluria

We partnered with the Oxalosis & Hyperoxaluria Foundation for a Facebook LIVE about primary hyperoxaluria and understanding rare diseases.

If kidney stones run in your family, it may be important for you to get tested for a rare disease called primary hyperoxaluria. Here, learn from a nephrologist, a patient and a parent of a child with PH.

AKF is grateful to our supporting sponsor Alnylam Pharmaceuticals for helping to make this event possible!

Helpful resources:

Primary hyperoxaluria and your kidneys (INFOGRAPHIC): https://www.kidneyfund.org/ph1-infogr...
Oxalosis & Hyperoxaluria Foundation: https://www.www.ohf.org
The importance of Rare Disease registries: https://www.ohf.org/patient-registry
Diagnosis and treatment: https://www.ohf.org/learn-diagnosis-t...
Understanding PH: https://www.ohf.org/learn-understandi...
Beyond the Stone: https://www.aboutph1.com/
Take on PH1: https://takeonph1.com/