Скачать или смотреть Severe ME/CFS Webinar Series Session 4: Research

The fourth and final webinar in our series focuses on severe ME research. Because traditional research methods are not always accessible to the severely ill, people with severe ME are often missing from clinical research. As they make up nearly 25% of all people with ME/CFS, their absence greatly limits our understanding of the disease. Those with lived experience have fought to change exclusionary research study models and reduce the many barriers to access.

Solve CEO Emily Taylor hosts Sabrina Poirier (co-founder of the ICanCME Research Network) and Dr. David Putrino (Department of Rehabilitation and Human Performance at the Icahn School of Medicine at Mount Sinai in New York City) to discuss how patients are working with researchers to increase research accessibility from concept to real-world execution.

Important Links:

Read the transcript here:
https://solvecfs.org/wp-content/uploa...

View the slide deck here:
https://solvecfs.org/wp-content/uploa...

The content provided by Solve M.E. and the Bateman Horne Center in this video is for informational purposes only and does not constitute medical advice. Viewers are encouraged to consult with medical professionals for specific advice tailored to their individual circumstances.