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Beyond Rare: Redesigning the Rare Disease Landscape

This Rare Disease Day, join us for a powerful Virtual Panel Discussion – “Beyond Rare”, where leading experts and advocates come together to explore how innovation, policy, and patient-centric care can reshape the rare disease ecosystem in India.

Meet The Speakers:

Dr. (Prof.) Jayesh Sheth, Chairman, Foundation for Research in Genetics & Endocrinology (FRIGE), Institute of Human Genetics

Dr. Prasad Narayanan, Lead Consultant, Medical Oncology & Hematology, Manipal Hospital

Mr. Saurabh Singh, Co-Founder & Director, Rare Diseases India Foundation (RDIF)

Moderator: Dr. Manisha Khurana, Editor-in-Chief, Voice of Healthcare & Founder – NextEdge Precision Medicine Insights

Date: 28 February 2026
Time: 4:00 PM – 5:00 PM

Be part of a meaningful dialogue focused on awareness, access, research, and redefining care for the rare disease community.

#RareDiseaseDay #BeyondRare #RareDiseases #PrecisionMedicine #HealthcareInnovation #PatientAdvocacy