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Скачать или смотреть OUR MCADD STORY | Expanded newborn screening saved our sons life! | The Bartel Family

  • The Bartel Family
  • 2021-03-10
  • 2462
OUR MCADD STORY | Expanded newborn screening saved our sons life! | The Bartel Family
mcaddmcadMedium Chain Acyl CoA Dehydrogenase (MCAD) Deficiencyliving with mcaddchildren with mcaddhospitalizedgeneticsgenetics testinggenetic disorderfatty oxidation disorderour storyour medical storyour health journeyour hospital storychristian familychristian vlogchristian family vlogfamily vlogLondon BartelColton BartelMorgan BartelThe Bartel Family
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Описание к видео OUR MCADD STORY | Expanded newborn screening saved our sons life! | The Bartel Family

Well folks, buckle up. This vlog is a long one BUT it is very near and dear to our hearts. We are finally sharing our MCADD story on the vlog.

Expanded newborn screening saved our sons life!

One tiny prick and a drop of blood is what kept my son here with us. About 1 in every 15,000 babies is born with his specific disorder, MCADD. About 1 in every 70 Caucasians is a carrier for MCADD. When both parents are carriers there is a 25% chance for their baby to have MCADD. With prompt treatment children with MCADD live healthy lives. Never underestimate your local hospital. If it weren't for Southwest Medical Center (Liberal, KS) we wouldn't have our fun loving little boy here with us today!

We will forever be indebted to SWMC, Driscoll Children's Hospital, Dr. Husainy, Dr. Jessica Acevedo-Gracia and London’s team of geneticists at both OU Children's Hospital in the earlier years and now at Texas Children’s Hospital.

NEW VIDEOS POSTED EVERY WEDNESDAY

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Morgan:
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Song: Little Things
by Cardigan Club
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Song: Little Things - Instrumental
by Cardigan Club
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Song Link: https://bit.ly/2PO3ppb​

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The Bartel Family is made up of Colton, Morgan and London Bartel. They are visual storytellers and part-time travel journalists. They live in Corpus Christi, TX and take every opportunity they can to share the stories of those around them.

Featured on:

Coastal Living TV (KZTV 10): https://bit.ly/2ZSC7z6​​
Corpus Christi Rocks: https://bit.ly/2MSX7R0​​
Made in Corpus Christi: https://bit.ly/2tnYb8r

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