Coffee Chat! Why Rare Disease, and CHD Awareness are Important to us. Birth Story and Hospital Stay.

Описание к видео Coffee Chat! Why Rare Disease, and CHD Awareness are Important to us. Birth Story and Hospital Stay.

Grab a coffee and hang out with us as we talk about something that's normally very private to us. Sharing our birth story and the whirlwind that followed. Why we're sharing our story now, and where our toddler's health stands.

More information about Adam's-Oliver Syndrome: https://rarediseases.org/rare-disease...

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