Spinraza for All

HI everyone! Tonight Shane discovered a new skill! Spinraza has been life changing for him, and since he began receiving it a year and a half ago, he's been uncovering lots of new skills. Most importantly, Spinraza stops the progression of the muscle wasting caused by Spinal Muscular Atrophy. Now, Shane is confident that he will still be able to breath, swallow, and talk many years from now. His life expectancy has gone from age 30 to "normal" with this drug. We are so grateful for everything Spinraza has given us, but this amazing treatment is sadly being denied to many. Several countries have denied or severely limited access to Spinraza. Please help us by sharing this video and doing everything you can to make Spinraza available for all in your country. Tell your friends, write your government officials, and yell it from the rooftops! It could change so many lives.

Hannah and I absolutely love making videos for you. If you would like to support our work so that we can continue sharing our life and relationship with you for years to come, you can do so on our Patreon:   / squirmyandgrubs  

Thank you SO much!

For more information on Spinraza, go to www.spinraza.com

MORE INFO ABOUT US AND OUR CHANNEL:

You can follow us on Instagram at:
Shane:   / shaneburcaw  
Hannah:   / hannahayl  

Our address:
Squirmy and Grubs
PO Box 16411
Minneapolis, MN 55416

You can PREORDER Shane’s upcoming memoir, STRANGERS ASSUME MY GIRLFRIEND IS MY NURSE, featuring many never-before-told stories about Shane and Hannah’s relationship, right here: https://www.amazon.com/Strangers-Assu...

SUBSCRIBE for more! 👉    / squirmyandgrubs  

Intro animation made by Pinkietoons! Check out her Instagram page to see more of her awesome work:   / pinkietoons  

Shane was born with a neuromuscular disease called Spinal Muscular Atrophy that requires him to use an electric wheelchair. He is the author of several award-winning books, the President of a nonprofit organization called Laughing At My Nightmare, and a renowned public speaker who has performed across the country at places such as Harvard University, The University of Florida, The University of Connecticut, Princeton University, and many more.

Hannah is a senior at Carleton College, studying sociology and anthropology. She works as a researcher for an educational consulting firm. Her future aspirations include attending law school and owning a goat sanctuary. She films and edits the “Squirmy and Grubs” vlog.

Shane and Hannah have been dating for over 2.5 years and living together in Minneapolis in recent months. Their interabled relationship often confuses people, because much of society still cannot fathom people with disabilities being involved in loving, intimate relationships. Anyone who watches these episodes will quickly see their relationship is just as “normal” as any other. Sure, Hannah helps Shane use the bathroom and brush his teeth, but those activities do not detract from the emotional, intellectual, and physical connection they experience together.