Скачать или смотреть VLOG | A Week In The Life with Jovie: Rett Syndrome, Epilepsy, Sydney Lockdown, Remote Learning!

Every year for Rett Syndrome Awareness Month in October, I had been creating something awesome with other Rett families. However, being locked down in Sydney Australia for the last 3 months changed those plans and I didn't have the head space or time to create something big.




So! Jovie and I decided that we would film little bits of her life, during a week in September 2021. I didn't capture everything that Jovie goes through in a week (I would need a film crew to help me!) but it does show little glimpses of what she's up to recently. Some things include our walks, the tail end of her seizures and how it effects her, her first covid vaccination, what she does during remote learning...


I wanted to keep it chilled out and not too hectic so there is no commentary other than the text on the screen. Feel free to ask questions about Jovie and Rett Syndrome!


If you are interested in learning more about Rett Syndrome, I have more videos here    • Rett Syndrome Awareness  



I shot the video on my iPhone XS Max, and edited it on a free app called InShot. All music is by Chillpeach    / @chillpeach