Aplastic Anemia and PNH – Update on Diagnosis and Treatment

Aplastic Anemia and PNH – Update on Diagnosis and Treatment
Carlos DeCastro, MD – Professor, Duke University

Panel Discussion Addressing the Gaps in Serving Patients with Aplastic Anemia and PNH - (begins at 42:30)
Emma Groarke, MD, NHLBI Hematology Branch
Susie Lee, PA-C, Keck School of Medicine, University of Southern California
Debra O’Neal, MSW, Patient
Topics include: Access to treatment and specialists; explaining the language of the conditions; barriers including lack of insurance, transportation, workplace issues, finances, and caregiver support.

AAMDSIF Symposium: Providing Equitable and Inclusive Care to Patients with Bone Marrow Failure Conditions
This virtual symposium provides updates on the most recent advances in the pathophysiology, diagnosis and clinical management of aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), secondary acute myeloid leukemia (AML) and hematopoietic stem cell transplantation. Additionally, the program addresses the current gaps in patient care for each of these diseases, such as clinical trial enrollment, reaching diverse patient populations, barriers to care, diagnostic challenges, genetic profiling, long term supportive care, and quality of life issues. The presenters represent innovative programs focusing on closing inequities and reaching underserved patient populations. The patient voice is incorporated through patient panelists and patient survey responses.

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