Скачать или смотреть Thank You - Bacause of you, we reached our initial fundraising goal!

In 2016, the Wiedemann-Steiner Syndrome Foundation set out to raise $250,000 to initiate crucial research for Wiedemann-Steiner Syndrome. With the help, commitment and generosity of the friends and family of those affected by WSS, we couldn’t be more thrilled to announce that the Foundation has successfully reached its initial goal. While our first monetary benchmark has been reached, it is not a finish line, rather a launching point. The Foundation’s work has only just begun.

In 2019, the WSS Foundation will be able to fund multiple mouse projects to gather comprehensive baseline data on WSS. As baseline data is collected, the Foundation will initiate research on particular symptoms affecting the WSS population. Disease specific research will help doctors, educators, and parents better understand WSS and will hopefully lead to pharmaceutical companies taking an interest in developing treatments for WSS patients; ultimately allowing our WSS Warriors to reach their greatest potential.

The Foundation will also be supporting multiple regional gatherings around the world in 2019, culminating in the second WSS Foundation International Family Conference in Houston, Texas in October. These gatherings allow families an opportunity to be surrounded by others that “get it”, an experience un-paralleled by any other.

As the Foundation advocates for comprehensive research with meaningful discoveries and connects the WSS community through thoughtful engagements, continual funding is a crucial piece. Your consideration of a year-end donation is appreciated beyond measure (www.wssfoundation.org/Donate).

From the bottom of our hearts, THANK YOU for believing in the efforts of the Foundation. We are eternally GRATEFUL for your continued
support.