Life, Unexpected: Caring For Children With Serious Illnesses - Part 1/4 | Full Episode

Star PALS is a service dedicated to improving the quality of life for children with serious illnesses or life-limiting conditions. We follow some of their dedicated physicians, nurses and medical social workers who provide unwavering compassion and hope through life’s most difficult moments, and explore why they continue to do what they do, and what keeps their spirits alive as they navigate the daily challenges of life and death?

We also meet some of the patients under Star PALS’ paediatric palliative care programme, like baby Nayla, who has the genetic disorder Trisomy 18, teenager Chloe, who is suffering from the rare disorder Pompe Disease and Edwin, who at 38, is one of the oldest Duchenne Muscular Dystrophy patients in Singapore.

00:00 Bringing up baby Nayla, who has a congenital disease
05:38 House visit from the paediatric palliative care nurse
09:09 Edwin, one of Star PALS' oldest patients & poster boy
14:30 A special Family Day for children with serious illnesses
16:16 Why these medical professionals chose to practice paediatric palliative care
22:39 Holistic care for children and their caregivers
25:27 18-year-old Taylor Swift fan
27:11 What is paediatric palliative care?
28:01 Netra's health scare and spirituality
34:50 Visiting a patient who was discharged from Star PALS
41:31 Keeping the Star PALS team morale up
45:19 In the next episode...


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About The Show:
Follow the inspiring stories of four individuals under paediatric palliative care as they and their families navigate the unexpected realities of life and death with courage and love.
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