Growing with Gaucher - a digital story

http://www.mynormal.ca/
"Emma's Garden: Growing with Gaucher" grew out of a personal speech Emma Rooney bravely delivered at a National Gaucher Foundation of Canada patient meeting in 2007 about having Gaucher. The digital story follows Emma's journey from her initial diagnosis at age 3 — when there were no treatment options available for doctors to present to her very worried parents — up to age 13, when she embarked on treatment for her condition and a future of new possibilities for her health. Set to a lush global backdrop, the digital story showcases vivid original illustrations by Emma's younger sister, Megan, weaving together photographs, artwork, and home video footage from the Rooney family treasure chest. "Emma's Garden" reflects the importance of a loving and supportive family, healthy active lifestyle choices, and advancements in medical science as key ingredients to living well in spite of Gaucher.
Version française:    • Le jardin d'Emma : grandir avec Gaucher  
*Deutsche Untertitel: Sie können diese aktivieren, indem Sie auf das untere Symbol im Video klicken. *Subtitulos en Español: puede activarlos haciendo click en el icono de la leyenda en la parte inferior del video. *Legendas em português: você pode ativá-las clicando no ícone de legendas na parte inferior do vídeo.