Скачать или смотреть Curing Rare Disease Is Possible | Lynn Hopkins | TEDxBelmontShore

10% of the global population suffers from a rare disease. Rare diseases not only impact the affected individuals, but their families and society as a whole. As a parent of a child with a rare disease, Lynn Hopkins describes why it is going to take more than just investment in research to cure rare diseases. By exploring what all rare diseases have in common, her conversation demonstrates how a cure starts with awareness and how each of us is part of the solution. Lynn Hopkins is the parent of a child with a rare, incurable genetic disease. She is a board member of the National MPS Society and an advocate for the rare disease community. Lynn is also a finance executive who creates the time to build awareness and promote meaningful conversations about curing rare diseases through her advocacy. She shares how rare disease is impacting you and why it is going to take more than investment in research to cure rare diseases. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx