Скачать или смотреть Finding Meaning in Chronic Illness

What do you do when you can't fix the problem? This is a raw and hopeful mother-daughter conversation between Joyce Li and Michelle.

We explore the reality of living with a chronic skin condition (like Topical Steroid Withdrawal / TSW or eczema), not as a story of a cure, but as a profound lesson in building a meaningful life alongside it.

Joyce, drawing from her PhD research on resilience and flourishing (The PhD Grandma’s Guide), and Michelle, from her personal journey, break down the myths of "bouncing back." They reveal how true resilience is found in simplicity, authentic presence, and shared purpose—not in grand gestures or miracle cures.

In this interview, we discuss:
● What "accepting what is" really looks like in daily life with a chronic illness.
● The simple, powerful acts of support that actually help (and what well-intentioned things don't).
● How to navigate feelings of helplessness as a caregiver or parent.
● The shift from seeking a "fix" to finding integration, meaning, and hope.
● How a health crisis can reshape identity and deepen relationships.

Key Moments:
00:00 Introducing Our Journey
02:00 Michelle's Daily Reality & Radical Acceptance
02:45 Chronic Illness and the Sense of Self
06:00 What Does "Bouncing Back" Really Mean?
09:40 How to Support someone with Chronic Illness?
12:20 A Moment of True Support and Grace that Changed Everything
14:18 How This Journey Transformed Our Relationship
16:25 For Caregivers: The Urge to Fix vs. The Power to Be Present
17:20 Not all is Lost, Counting the Gains
20:50 Michelle's Hard-Won Message for Finding Purpose & Hope
22:55 Joyce's Conclusion: The Path to Resilience
24:34 A slide on: Whis is Eczema and TSW

*Disclaimer: This conversation is based on our personal experiences and is not intended as medical advice. Please consult with healthcare professionals for medical concerns.

🔗 Resources & Connection: https://www.itsan.org/
A non-profit organization that provides a safe place people with Topical Steroid Withdrawal.

📚 Explore Joyce's work on The Granda’s Guide to Living for more on resilience, simplicity, and finding purpose.
   / @joyce.fullnessoflife  

💬 Join the conversation below! We’d love to hear from you.

Where in your life are you trying to ‘fix’ a complex problem, when a simple, purposeful act of presence might be the more resilient path?

Share your story.

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