Life with LC-FAOD: Tasia’s Story

Tasia lives with very long chain acyl-co A deficiency (VLCAD), a type of LC-FAOD. After being diagnosed, she was in denial at first, but she has learned to accept her condition, take ownership,and not let it define her. Tasia is proud to be a beacon of hope for young people living with a rare disease. Long-chain fatty acid oxidation disorders (LC-FAOD) are a group of rare conditions that impair the body’s metabolism from breaking down certain fats from food into energy. Other LC-FAODs include Carnitine palmitoyltransferase (CPT I or CPT II) deficiency, long-chain 3-hydroxy-acyl-CoA dehydrogenase (LCHAD) deficiency, and trifunctional protein (TFP) deficiency.

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