Скачать или смотреть My first Pamidronate infusion for OI treatment

A short clip from my son's first infusion treatment for his OI. We were there early at 8am. He was done at about 3:30pm. This was also his first time getting an IV. The staff was amazing. They used a cold spray, which I highly recommend requesting if your son/daughter is afraid of needles. The chikdren's hospital we go has a special person that assist them with distracting the patient when they put the needle in. They did an awesome job preparing my son for everything. He was also able to order break gas and lunch and loved the food there. Close to the end of the infusion he started getting a bit sleepy. In the ride home he fell asleep. But at home he was playful and ate good at dinner. At night time the pain started and he had trouble sleeping. The next day he has being miserable with pain, fever and nausea. I have only been able to give him soft foods. He did threw up breakfast, but nothing more. This is how our story with OI begins