Скачать или смотреть Stephanie Saville of Pediatric Retinal Research Foundation I accessiBe's Spotlight Sessions

Welcome to our Spotlight Sessions, a series dedicated to conversations with change-makers and people that have made an impact on the community of people with disabilities.

In this episode, we had the chance to speak with Stephanie Saville, the Foundation Manager at Pediatric Retinal Research Foundation (PRRF). Founded in 1990 by a group of physicians and volunteers, PRRF is committed to finding and researching low vision and blindness caused by premature birth and other rare retinal diseases. In addition to advocacy and research, they are supporting and creating a community for the people impacted by pediatric retinal diseases.

Stephanie shared her thoughts on the following topics:
1. Her background of over 20 years in nonprofit
2. The mission behind PRRF and two major focuses
3. The research being conducted through a partnership with Oakland University and their exciting advancements to begin clinical trials in 2022
4. The importance of spreading awareness about rare retinal diseases
5. How people can get involved in PRRF’s mission
6. Her view on what accessibility means and how technology plays a role in accessibility
7. The importance of understanding all your potential clients and experiencing what they experience
8. How to get involved with Pediatric Retinal Research Foundation

You can learn more about Pediatric Retinal Research Foundation by visiting: www.pediatricrrf.org

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