97. Learning to Spot the Signs of Ehlers-Danlos Syndromes with Guest Host, Kate Colbert

In this special “EDS Awareness Month” episode of the Bendy Bodies Podcast, founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs of
Ehlers-Danlos Syndromes. #EDSAwarenessMonth #EDSAwareness #EhlersDanlosSyndrome

Takeaways

EDS Awareness Month is an opportunity to educate and spread awareness about Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD), and associated conditions.
Healthcare professionals should listen to their patients and believe them, even if a clear diagnosis is not yet established.
Teachers, daycare providers, and nannies can play a crucial role in identifying hypermobility conditions in children.
Coaches and athletic instructors should be aware of the signs of EDS in athletes and dancers and provide resources for further evaluation and support.
Several myths about EDS, such as the misconception that EDS does not cause pain and that only geneticists can diagnose it, should be debunked.
Early intervention and appropriate treatment are crucial for better patient outcomes. Mast Cell Activation Syndrome (MCAS) is an important condition to consider in individuals with environmental sensitivities, even if their tryptase levels are not elevated.
Understanding and empathy are crucial in relationships where a partner has EDS or HSD, as the condition can cause dynamic disability and varying needs.
Communication is key in relationships, and using mirroring techniques and talking boundaries can help improve understanding and compassion.
Employers and coworkers should show support and offer accommodations to individuals with EDS, such as checking in with them, providing grace, and making the workplace more accessible.
Increasing awareness about EDS and related conditions is essential to foster empathy, support, and better partnerships in healthcare, workplaces, and society.

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Chapters ➡

00:00 Introduction and EDS Awareness Month
09:30 Identifying Hypermobility Conditions in Children
31:06 Early Intervention and Appropriate Treatment
42:04 Supporting Individuals with EDS in the Workplace
54:59 The Importance of Awareness and Empathy for EDS and Related Conditions

Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

YOUR bendy body is our highest priority! 🧬🔬🦓


#EDSAwarenessMonth #EDSAwareness #EhlersDanlosMyths #HSD #MCAS #BendyBodies #HSDAwarenessMonth #EhlersDanlos #ehlersdanlosawareness
#Hypermobility #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD
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⭐⭐⭐ About Bendy Bodies Podcast ⭐⭐⭐

Are you affectionately known as “Gumby” among your friends and family? Being “double-jointed” isn't just a quirky trait—it can lead to a host of problems throughout the body, even if you were once “bendy” but aren't anymore. Connective tissue disorders, like Ehlers-Danlos Syndromes (EDS), often go unrecognized by doctors, causing life-altering symptoms such as pain, frequent injuries, joints “giving way,” fatigue, gastrointestinal issues, and insomnia.

Welcome to the Bendy Bodies Podcast, hosted by EDS expert, Dr. Linda Bluestein, a board-certified MD with expertise in anesthesiology and the clinical management of pain in patients with hypermobility disorders. Join us as we delve into topics relevant to anyone experiencing symptomatic joint hypermobility. From insightful discussions with specialists boasting diverse expertise to practical tips for optimizing your hypermobile health, we're here to empower you on your journey to wellness.