Learn About the Rare Disease Community: Meet Dr. Dr. Harsha Rajasimha

Описание к видео Learn About the Rare Disease Community: Meet Dr. Dr. Harsha Rajasimha

After dedicating his life to researching, analyzing and discovering novel rare and common mutations associated with macular degeneration, Dr. Harsha Rajasimha quickly realized the suffering and pain that over 400 million people and families with #rarediseases live with worldwide. And when he became the father of a child with #edwardssyndrome, a rare genetic disease, his eyes were opened to the other side of #raredisease research and advocacy. Hear how he has re-dedicated his life to supporting the global #raredisease community as part of our #RAREis program dedicated to elevating the voices, faces and experiences of the #raredisease community.

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