Alex and Daniel's story: Smith-Lemli-Opitz syndrome (Thank You)

Описание к видео Alex and Daniel's story: Smith-Lemli-Opitz syndrome (Thank You)

Brothers Alex and Daniel have issues linked to autism, feeding and digestion - making their early years as babies a particular struggle for mum Victoria. Alex was also born with scoliosis, also know as curvature of the spine, and Daniel with a hole in his heart. Finally all their symptoms were explained by a diagnosis of SLOS, a rare metabolic condition for which there is no cure.

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