Скачать или смотреть Patient Talk: The Evolution of Patient Advocacy in Spinal CSF Leak, by Linda Pohuski

This talk about the evolution of patient advocacy groups and events in spinal CSF leaks was given by patient Linda Pohuski, sharing her perspective from the early days when she sustained her leak to now. This talk was presented at the 2nd annual Spinal CSF Leak: Bridging the Gap Conference on November 2-3, 2024, in Aurora, Colorado.

This conference is a partnership between the Spinal CSF Leak Foundation and Dr. Andrew Callen and the University of Colorado Anschutz Medical Campus.

Please see our conference landing page for more about this event: https://spinalcsfleak.org/conferences...

0:00 - Introduction
0:24 - First Symptoms and Diagnosis
2:54 - Practical Advice for Daily Living
3:34 - Connecting Through Social Media
4:41 - Founding of the Spinal CSF Leak Foundation
5:39 - Meeting Other Leak Patients
6:23 - Building Awareness and Community
7:31 - First Spinal CSF Leak Conference
11:07 - Seeking Treatment After 10 Years
12:02 - Sharing My Story to Help Others
12:59 - The Power of Awareness and Hope