Скачать или смотреть Dec 2020 CCHCSP ON Session - Large Datasets in Child Health Research: Ethical Considerations

Objectives:
What: Describe the range of ethical challenges associated with research using ‘big data’ and particularly the secondary use of child health-related data

Why: Understand how these challenges may affect your research and ways to potentially mitigate these challenges

How: Discuss the contexts in which ethical challenges arise; Identify potential avenues for addressing these; Discuss potential resources

Dr. Stuart Nicholls is the Strategy for Patient Oriented Research (SPOR) Facilitator and a Senior Clinical Research Associate at the Ottawa Hospital Research Institute (OHRI). His is a member of the Public Health Agency of Canada/Health Canada Research Ethics Board and holds editorial positions at the journals Research Ethics and the Journal of Empirical Research on Human Research Ethics. He has published widely on the topic of informed consent, population health ethics, as well as challenges raised by more pragmatic ('real world') research approaches including the use of routinely-collected data.