MY DIAGNOSIS REVEAL! [CC]

After about 2.5 years of hospitals, testing, and emotionally exhausting interactions with doctors, I finally got it; my diagnosis! In this video, I'm gonna share with you how I'm doing with the news, how I got here, the symptoms and what it all means, and what are my next steps. Please click to read some more information and personal updates below!

Something I forgot to mention and I'm not sure if I made clear, my type of EDS is not fatal, as in it's not actively killing me, I haven't received an altered life expectancy. However, I do have to be aware of how EDS can affect my body and get tests from time to time to monitor my brain, heart, lungs, muscles, and other internal organs, because it has the potential to cause me complications in those areas, and THAT... we'll deal with it as it comes.

Again, with a diagnosis at least I know what to look out for!

I also MIGHT have some more DXs coming up. EDS was one of the chromosome variants but there are two more and the geneticist wants me to get more tests and see what's up with that.

If you would like to make a contribution to help with my medical expenses and in the efforts to move around independently again via powerchair, I'll leave some links below!

PAYPAL: http://paypal.me/annieelainey
PATREON:   / annieelainey   (Support my work for as little as 1$/mo! 12$ a year to say that you enjoy my work and want to see more!)
GOFUNDME: http://bit.ly/1U62Kti (I'd prefer another method because they take a percentage of your donation away, but if you must I'm leaving the link anyway)

More Info on Ehlers Danlos:
http://ehlers-danlos.com/what-is-eds/
https://en.wikipedia.org/wiki/Ehlers%...
http://rarediseases.org/rare-diseases...

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FACEBOOK:   / annesegarra  
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