Staying Active with Periodic Paralysis | Maya's story | A Rare Adventure Ep 01

Staying active with a rare disease like Periodic Paralysis is sometimes challenging. In the first episode of A Rare Adventure, we take a look at how a young woman is doing just that, staying active with periodic paralysis. She explains how she enjoys her hobbies of dancing in a J-Pop band and riding horses while balancing symptoms of muscle weakness, migraines, and potassium deficiency due to her rare disease.

In this episode, Maya shares how she manages her symptoms with medication. We have a great resource of options for medicines for hypokalemic periodic paralysis on our website: https://periodicparalysis.org/medicat...

#PeriodicParalysis #ParamyotoniaCongenita #DayInTheLife

Auracle, Maya's J-Pop Band - Social Media:
Youtube -    / @auracle  
Instagram -   / auracle  

Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at https://www.periodicparalysis.org

We'd love to hear from you. Comment below on your experience with PP or with questions about the condition.

You can also donate at
https://www.periodicparalysis.org/donate
Your donation will help with Dr. Cannon's genetic research or a list of other extremely helpful options. The great thing is you can decide how you want your donation to be used.

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Connect with us on social:
Facebook:   / periodicparalysisassociation  
Instagram:   / periodicparalysis  

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#MyLife #misdiagnosed #diagnosed #PPA #PeriodicParalysisAssociation #NotFaking #paralyzed #PPAttack #ARareAdventure #PMC

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