Andrew's Story: Fighting KCNT1-related Pediatric Epilepsy

Join us in Andrew's inspiring journey, where his parents, Justin and Lisa, are determined to save him and other children from KCNT1-related pediatric epilepsy. Justin West, a devoted physician and father of three, also serves as the Co-Founder and Director of Clinical Medicine at the KCNT1 Epilepsy Foundation. Discover their unwavering commitment to finding a cure and advocating for parents facing similar challenges.

Visit KCNT1Epilepsy.org to:

Explore KCNT1-related epilepsy diagnosis and connect with a supportive community of parents and caregivers.
Understand the KCNT1 gene and its impact on brain and heart electrical activity, leading to seizures.
Learn about different KCNT1-related epilepsy syndromes, including early onset and later onset forms.
Discover the importance of accurate diagnosis and genetic testing.
Explore treatment options, from traditional medications to dietary approaches.
Gain insights into addressing associated symptoms and managing the condition's complexities.
Support the KCNT1 Epilepsy Foundation's mission to raise awareness and fund crucial research efforts.

Connect with us and be part of a community dedicated to making a difference. If you have questions or need support, please reach out. Together, we can raise awareness and empower parents and caregivers affected by KCNT1-related epilepsy.