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World Ectodermal Dysplasia Day – Kigali, Rwanda (Livestream)

Join us for World Ectodermal Dysplasia Day as we raise awareness and strengthen coordinated support for individuals and families affected by Ectodermal Dysplasia (ED) in Rwanda and beyond.

This hybrid event brings together clinicians, students, partners, and community voices to highlight the medical, dental, and psychosocial needs of people living with ED — while promoting dignity, inclusion, and practical referral pathways.

📅 Date: 20 February
📍 Location: Kigali, Rwanda (Hybrid Event)
🎥 Livestream: YouTube (Hosted by FIRAT)
What to Expect

✅ Expert sessions on ED (clinical overview, oral health, psychosocial care)
✅ Lived experience testimonies (shared safely and with consent)
✅ Panel discussion with Rwanda and international experts
✅ “Way Forward” commitments for follow-up action in Rwanda

Organized By

Rwanda Dento-Medical Society (RDMS)
With technical hosting support from FIRAT – Foresight Institute of Research and Translation

Who Should Attend

Health professionals and students

Families and caregivers

NGOs and advocacy groups

Media and partners

Anyone interested in rare diseases and inclusive healthcare

Let’s Connect

Together, we can promote earlier recognition, better referral direction, and stronger multidisciplinary support for ED in Rwanda.

📌 #WorldEDDay #EctodermalDysplasia #RareDiseases #RDMS #Kigali #Rwanda #InclusiveHealthcare