Скачать или смотреть LIFE WITH NO NURSES| FULL MOTHERHOOD VLOG| 24 HOURS WITH THE JOHNSONS

Our days usually consist of nurse coverage but on this weekend we had multiple days with no nurses. Balancing working, motherhood, care for our children can be a handful but smiles on the kids faces make it all worth it.

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My sweet daughter Caliyah Joy was born with a rare syndrome called Pfeiffer Syndrome, which causes premature fusion of certain bones of the skull (craniosynostosis), affecting the shape of the head and face. You will see her overcome many obstacles and live life to the fullest despite her disability. If you are still wondering, what is Pfeiffer Syndrome? Well you can learn all about it here,    • WHAT IS PFEIFFER SYNDROME? PART 1|CRANIOFA...  
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