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Why Patient Lived Experience Matters in IBD Research | IBD Plexus
People living with chronic diseases like Crohn’s disease and ulcerative colitis are the true experts in their own IBD journeys. In this video, IBD Plexus highlights the power of centering patients’ lived experiences to shape more meaningful, effective inflammatory bowel disease (IBD) research.
By gathering patient insights about symptoms, daily challenges, and disease management, IBD Plexus helps ensure research reflects what matters most to people living with IBD. This patient-first approach leads to better questions, stronger studies, and outcomes that truly meet patient needs.
In this video, you’ll learn how IBD Plexus:
• Centers patient lived experience in IBD research
• Collects real-world insights on symptoms and disease management
• Elevates patient voices to improve research relevance
• Advances care for people with Crohn’s disease and ulcerative colitis
🔗 Learn more about IBD Plexus: https://www.ibdplexus.org