Скачать или смотреть Superficial Siderosis Symposium Research Roundtable 2025

How Scientists, Clinicians, and Patients Are Charting a New Course for Superficial Siderosis

On June 13, 2025, the final morning of the Superficial Siderosis Symposium, neurologists, a neurosurgeon, an MRI researcher, a hematologist, a specialist in audiovestibular Medicine, a clinical fellow in neurology, and audience members gathered together at the research roundtable. It set out to answer a deceptively simple question: What has to happen next so we can finally slow, stop, or even prevent superficial siderosis (SS)? Over the course of two intense hours, the group discussion transitioned from raw epidemiology to cutting-edge imaging, debated spinal fluid biomarkers, explored iron-handling genes, and sketched the outlines of the first genuinely global treatment agenda. Here is what patients and caregivers need to know.

Roundtable Panelists:
Michael Levy, MD, PhD,
Neuroimmunology Clinic Director,
Massachusetts General Hospital

Professor David Werring, Ph.D., FRCP, FMedSci,
Professor of Clinical Neurology,
UCL Queen Square Institute of Neurology

Dr. Natallia Kharytunik Phd
Resident Doctor
Royal National ENT and Eastman Dental Hospitals

Philip A. Haddad, MD, MPH, MHA, MSHCI
Professor of Medicine
LSUHSC-S/Feist-Weiller Cancer Center

Wouter Schievink MD
Professor of Neurosurgery
Cedars-Sinai Medical Center

Alex Cavarjal Gonzalez, MD, PhD
Clinical Fellow in Neurology
Massachusetts General Hospital

Susannah Krzyzanowski
Clinical Scientist
Perspectum LTD.