Meet Mark Edwards

Описание к видео Meet Mark Edwards

This is an old podcast that is no longer in production. But I've archived the episodes here in the hopes they might help someone. Please see my updated contact information below.

Mark Edwards is an adult living with PKU in Wales. Social media can be a great tool for meeting others in the PKU community. Mark and I met on Facebook years ago, but in 2015 we met in person at the ESPKU Conference in Berlin. Mark and I talk about what life was like for him growing up with PKU, his adventures in PKU advocacy, and tips he has for teens and adults struggling with the PKU lifestyle.
A couple of links mentioned in the show. First, Mark is creator of the Facebook page PKU Awareness UK & Ireland:   / pku.awareness.uk  .
And early in the show I mentioned my new role as Vice President of the Board of Directors for the Louisiana Metabolic Disorders Coalition. If you live in Louisiana and would like to join our private Facebook group then please send me a message. My contact info is below. But if you'd also like to follow us on our public Facebook page, here is the link: www.facebook.com/louisianamdc. We are also on Instagram @louisianamdc.
Thanks for listening, and I'll see you next time!

Contact Kevin Alexander
Website: PKUJournal.com
Instagram: @kevinalexander_pku
Facebook: @pkujournal
LinkedIn: Kevin Alexander
Email: [email protected]

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