Ella's story - Epidermolysis Bullosa | Sydney Children's Hospitals Foundation

Baby Ella was born with skin as fragile as butterfly wings. 🦋

Ella lives with a rare condition called Epidermolysis Bullosa, a rare genetic condition where a specific protein responsible for gluing layers of skin together is missing. This means layers of skin easily separate from each other with any friction.

With the help of world-class specialist care at Sydney Children's Hospital Randwick, Ella can enjoy more of the joys of childhood. To a family like Ella's, a donation during our Sydney Sick Kids Appeal means so much more than financial support. It helps kids like Ella lead a fulfilled life and experience things they might not be able to without specialist care.

A child in hospital is a childhood on hold. Visit the link and donate today, to help kids like Ella live a childhood they deserve.

DONATE TODAY
🔗 https://www.schf.org.au/sska24