Скачать или смотреть Adults with sickle cell disease face a system not designed to support them | Side Effects

Sickle cell disease was long considered a pediatric illness because it took so many children's lives. Health interventions have made it possible for people with sickle cell in the U.S. to live well into adulthood. But the transition out of pediatric care comes with many challenges. Adult sickle cell patients are faced with an extreme shortage of sickle cell specialists and can struggle to access comprehensive care. Experts say structural and systemic racism underlie those challenges.

Reporting by Farah Yousry Videography by Jacob Dean This work is supported by a grant from the USC Annenberg Center for Health Journalism’s 2022 Impact Fund for Reporting on Health Equity and Health Systems.

Check out these stories from Side Effects Public Media to learn more:

-Sickle cell patients face a double whammy: Systemic racism and a crippling disease (https://bit.ly/3y2mRST)

-Getting fertility care is complex. It can be harder if you have sickle cell disease (https://bit.ly/3zRGP42)

-When children with sickle cell grow up, they face a system not designed for them (https://bit.ly/39CT4H3)

Side Effects Public Media, a health reporting collaborative based at WFYI. Learn more at https://www.sideeffectspublicmedia.org/