MY ARACHNOIDITIS UPDATE : ONE YEAR SINCE DIAGNOSIS

Update on symptoms one year since arachnoiditis diagnosis and six months since my last flare and IV steroid treatment. Things have progressed to a stable 'peak' in what I can do 1:30. Despite many many ongoing daily symptoms and challenges 2:00 including trouble sitting down 4:00 - with the help of daily medication and lots of walking each day 3:22 we have managed to go on holiday 1:40 and do many things that would have been impossible this time last year.

Medication changes: 5mg prednisolone every other day (after 20mg Omeprozole to protect stomach), daily 4.5ml LDN & Iron tablets for low ferratin levels 4:56
Arachnoiditis a relapsing - remitting condition: 6:37

At the moment we are not sure if the spinal CSF leak is still there or not. It was last seen on MRI in September 2019. I do also have Tarlov cyst/s in my sacral spine.

For further additional info linked with this video update please see this blog aticle: https://beckyhillblog.com/2021/08/21/...

#Arachnoiditis​​​ #AdhesiveArachnoiditis​​​ #SpinalCSFLeak​​​ #TarlovCysts #CSFLeak

To read about my July 2020 hospital stay and diagnosis please see: https://beckyhillblog.com/2020/08/22/...

To see my six year medical case summary video since my original trigger ladder fall please see here:    • MY SPINAL CSF LEAK & ARACHNOIDITIS ST...  ​

Please note: This is a fully public educational video project & can be shared with anyone in any setting with my full permission. My only desire is to raise awareness of these desperately awful conditions & how to treat them.

UK CSF LEAK CHARITY: https://www.csfleak.info/
US CSF LEAK CHARITY: https://spinalcsfleak.org/
ARACHNOIDITIS: ‘Arachnoiditis – Taming the Most Painful Pain’ Dr Forest Tennant video
   • Arachnoiditis—Taming the Most Painful...  ​​
ARACHNOIDITIS: Suspecting & Diagnosing Arachnoiditis (J. Antonio Aldrete)
https://www.practicalpainmanagement.c...