Sickle Cell Disease Implementation Consortium Registry (SCDIC) Registry Data in BDC

This presentation is a must-watch for investigators considering working with SCDIC data. The presentation discusses the original studies, the registry, the data, data collection and demographics.

Related links:
The Cure Sickle Cell Page with the BDC link: https://curesicklecell.rti.org/

Cure Sickle Cell Initiative https://curesickle.org/. Information includes top priorities, data resources, clinical trials, assessing and mitigating risk of genetic therapies, and natural history.

Priya Parikh, MD presents on reported outcomes in Latinx individuals with Sickle Cell Disease (10 minutes):    • Priya Parikh, MD presents on reported...  

Tabitha Hendershot presents on the Sickle Cell Disease Implementation Consortium Registry (SCDIC) Registry Data in BDC (15 minutes):    • Sickle Cell Disease Implementation Co...  

How to search sickle cell data on BDC using an open search capability with no login required (18 minutes):    • Open Access Search Demonstration on e...