A Kid with a Deadly and Invisible Disease (Barth Syndrome)

Описание к видео A Kid with a Deadly and Invisible Disease (Barth Syndrome)

Connor is diagnosed with a deadly and mostly invisible disease known as Barth syndrome. This genetic condition weakens every muscle in his body including the heart. Connor wants his friends to know that there is a reason he struggles to keep up while playing.

Learn more about Barth syndrome at https://www.barthsyndrome.org/

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