Newly Diagnosed

Receiving a diagnosis of Ataxia can be overwhelming. There is a lot to learn, but you are not alone. This session will help you learn how to take charge of your care plan and hear about the personal journey of someone who has been where you are.

Speakers: Dr. Odinachi Oguh and Kristy Taylor

Speaker Bios

Dr. Odinachi N. Oguh is a neurologist at Cleveland Clinic Lou Ruvo Center for Brain Health. She received her medical degree from University of Szeged Faculty of Medicine in Hungary. She completed an internship and residency at the University of Illinois College of Medicine at Peoria. She also completed a movement disorder fellowship at McGaw Medical Center of Northwestern University.

Kristy Taylor is the coleader for the Las Vegas Ataxia Support Group. In addition to being an advocate for clinical trial participation and Ataxia awareness, she is also involved with advocacy for disability rights and equal representation of models/entertainers with disabilities. She lives with her husband and their 4 animals in Las Vegas.

For more information on Ataxia, please visit our website: https://www.ataxia.org

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As interest continues to grow from the pharmaceutical industry in developing drugs to treat Ataxia, we believe that collaboration among researchers, clinicians, pharmaceutical companies, and Ataxia patients is at a critical moment. Each of these groups must work together, as partners, to advance progress toward better patient care and more effective treatments for Ataxia. 2023 AAC was a place to connect, learn, and take action toward accelerating treatment development!