Beyond The Diagnosis: Patient Stories, Expert Insights. Episode 1

Описание к видео Beyond The Diagnosis: Patient Stories, Expert Insights. Episode 1

CMT patient Lily Sander began her journey with the CMT Research Foundation through an interview with the CMTRF's Chief Mission Officer, Susan Ruediger. Deeply moved by the CMTRF's mission, Lily wanted to get more involved and became an ambassador for the foundation.

Now, thrilled with the opportunity to further connect with the CMTRF community, Lily hosts Beyond The Diagnosis, sharing patient stories and expert insights.

In episode 1, Lily sits down with Arthur Suckow, co-founder of DTx Pharma and new member of the CMTRF Board of Directors.

Lily and Arthur delve into his journey from academia to founding a biotech company and his decision to dedicate his time to the CMT community. Arthur shares insights into the latest advancements in CMT research, the importance of the collaboration between pharmaceutical companies and patient advocacy organizations and the hope he holds for individuals living with CMT.

Tune in for an inspiring conversation about innovation, perseverance and the pursuit of a cure.

To learn more about CMTRF, or to donate to help find a cure for CMT, please visit https://cmtrf.org/.
To learn more about the CMTRF Global CMT Convention, visit https://cmtconvention.cmtrf.org.

Комментарии

Информация по комментариям в разработке