Sue - Living with Acute Hepatic Porphyria (AHP)

Описание к видео Sue - Living with Acute Hepatic Porphyria (AHP)

This video was created for CEMEA audiences.

Acute Hepatic Porphyria (AHP) is a chronic disease that can place a heavy burden on the lives of patients and their loved ones. Hear from Sue how she was diagnosed with acute hepatic porphyria, how she copes with it and how it affects her daily live.

"I’m advocating to try and make sure there’s a lot of awareness, disease awareness. To make sure that my little girl doesn’t suffer, in the same way that me and my sister have. Because no one should suffer in the way that we have."

AS1-CEMEA-00103

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