Скачать или смотреть Fighting to Be Heard: Taylor Jackson’s Journey Through Dismissal and Diagnosis with IH

Welcome to Living With…, a YouTube series presented by the Hypersomnia Foundation. In this episode, Claire Crisp sits down with Taylor Jackson, a recent Harvard neuroscience graduate, craft enthusiast, and passionate animal lover, to discuss her extraordinary journey living with idiopathic hypersomnia (IH).
Taylor opens up about her long and challenging path to diagnosis, including years of unexplained symptoms, being dismissed by over ten doctors, and the emotional toll of being misunderstood by medical professionals. She recounts pivotal moments, such as accidentally sleeping for 26 hours, which led her to take a medical leave from college and ultimately seek answers.

Despite these obstacles, Taylor’s determination never wavered. She shares how she managed to return to Harvard, the impact of effective medication and lifestyle changes, and the importance of advocating for accommodations—both residential and academic—that made her success possible. Taylor also discusses the realities of living with daily symptoms like brain fog and sleep inertia, and how support from family, friends, and her university community played a crucial role in her journey.

Taylor’s story is a testament to resilience, self-advocacy, and the power of raising awareness for IH. She offers practical advice for students navigating similar challenges and highlights the value of bridging the gap between patients and scientists in the field of sleep medicine

Living With… is hosted by Claire Wylds-Wright with the Hypersomnia Foundation and produced by Elizabeth Joy Windom of Windhaven Productions.

A special thanks to our sponsors!
Gold Sponsors — Avadel Pharmaceuticals and Takeda Pharmaceuticals
Silver Sponsors — Harmony Biosciences and Centessa Pharmaceuticals
Bronze Sponsors — Alkermes