Скачать или смотреть 1. What is a Registry

What Is a Registry (5:52)
What is a patient registry?
A registry as a community

This video is #1 in a series of videos taken from an August 2017 webinar about the FTD Disorders Registry produced by the Association for Frontotemporal Degeneration. Videos in this series include:

What is a Registry?
What Is the Purpose of the FTD Registry? (5:37)
Why Join? Who Can Join the FTD Registry? (3:59)
FTDDR Contact Registry (2:23)
FTDDR Research Registry (6:58)
Participant Login, Dashboard & Username/Password Recovery (5:10)
How Your Data & Privacy Is Protected (1:30)
Q&A Topics (20:50)

For more information about the FTD Disorders Registry, please visit our website at https://www.ftdregistry.org.

For more information about the Association for Frontotemporal Degeneration, please visit their website at https://www.theaftd.org/