Everything you wanted to know about Vascular Ehlers-Danlos Syndrome Part 2: Expert Q&A webinar

Описание к видео Everything you wanted to know about Vascular Ehlers-Danlos Syndrome Part 2: Expert Q&A webinar

🎥 Watch the Replay of our Inspiring Vascular Ehlers Danlos Syndrome (vEDS) Q&A Webinar, held on May 23rd, 2023! 🌟

In this webinar, Prof Tristan Mirault, Professor of Vascular Medicine from AP-HP Hôpital Européen Georges Pompidou, Dr. Anna Stenborg, Physician from Uppsala University Hospital, and Eva Collado, a vEDS patient advocate and Vice President of the Spanish Patient Organization for Ehlers-Danlos Syndromes and Hypermobility came together to address pressing questions submitted by vEDS patients across Europe.

Throughout the webinar, our experts addressed a wide range of topics related to vascular Ehlers-Danlos syndrome such as Pregnancy, Genetics, Dealing with vEDS, Medication and Research, and more.

Contents of the video
0:00:00 Intro
0:04:33 Genetics
0:09:22 Dealing with vEDS
0:15:30 Medication & Research
0:23:04 Pregnancy
0:26:45 Lifestyle
0:31:41 Risk & Intervention
0:50:40 Pain
0:54:14 Q&A and Conclusion

Click play to embark on a journey of knowledge and hope. 🔗 Share this video to raise vEDS awareness and support others on their vEDS journey. Remember, together, we conquer vEDS challenges!

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#VascularEDS #ehlersdanlossyndrome #vEDS #VASCERN #raredisease #rarediseases #WebinarReplay #expertinsights #communitysupport

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