Hypermobile Ehlers Danlos Syndrome:My Story

Описание к видео Hypermobile Ehlers Danlos Syndrome:My Story

Hypermobile Ehlers danlos Syndrome, my story. This is the history of how I went undiagnosed for most of my life and then finally received my diagnosis of connective tissue disorder hEDS in my 40's and how I've been making my life better since then.

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A little bit about me:
Hi I'm Purple Ella and my family is an autism family with three out of five of us on the autistic spectrum. I also have a connective tissue disorder (hypermobile Ehlers-danlos syndrome). So life can be a challenge but also a lot of fun.

Helpful links
The National Autistic Society - http://autism.org.uk
Hypermobility Syndromes Association - http://hypermobility.org

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